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Having a baby by sperm donation is an intensely personal and emotional process. So what happens when you discover that the donor has a genetic health disorder? S perm donor looked good on paper.

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Advocates say there should also be testing for genetic diseases such as cystic fibrosis, Tay-Sachs disease and Fragile X syndrome and that donors should no longer be anonymous. There are approximately 1 million children in the US born via a sperm donor.

In a case in California, a donor passed on hypertrophic cardiomyopathy to nine of his 22 known offspring -one died, she Kramer said. Naturopath reveals the s to watch out for - and the simple Body is found in search for missing woman, 25, whose car was abandoned with all her belongings Husband in his 70s woke to find his wheelchair-bound year-old wife hanged in hotel room where they were Did virus spread at Boardmasters surf festival?

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The single-mother began a medical crusade, calling for tighter regulations of sperm banks to avoid leaving children like Tyler without key-information about their medical histories. And I don't think sperm donors should be anonymous.

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Which contestants are left? Argos AO. Privacy Policy Feedback. Both mothers were struck by how similar the half-brothers were. Coverage of her efforts alerted Rebeca Price, who's son Stuart is Tyler's half brother, to the fact that her child also suffered from the same defect - essentially saving his life. The year-old took it upon herself to inform the sperm banks where Tyler's father No. When a donor develops a genetic disease after donation, families are very rarely told, according Ms Kramer who conceived her own son via sperm donation.

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Tyler told People that he has no desire to meet his other half-siblings but said he was glad to have found a brother. Rebecca Blackwell and son Tyler were devastated when they found out the sperm donor had a rare, genetic mutation and the family wasn't told. Lobbyists: want donor-conceived children to be able to receive more information on the medical history of their donors.

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John also had Asperger's syndrome, something Tyler and Stuart also have, which Ms Blackwell believed was passed on. Comments 6 Share what you think.

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It shouldn't be secret. Ms Blackwell and Tyler,18, of Maryland were never warned about the condition that, if not corrected, could have resulted in a fatal aneurysm. When Rebecca Blackwell discovered her son Tyler had inherited a life-threatening heart defect via a sperm donor, she not only feared for his life but also the lives of 35 other children the man had fathered. Wendy Kramer and her son Ryan formed a Donor Sibling Registry and work to make information more available to donor-conceived children.

From dream to nightmare: when your sperm donor has secrets

They discovered that John, two brothers and their mother all had an 'unnamed, never before seen genetic mutation' disorder. The views expressed in the contents above are those of our users and do not necessarily reflect the views of MailOnline. Share this article Share. Ms Blackwell was only alerted to Tyler's condition and his 35 siblings when they tracked down sperm-donor 'John' three and a half years ago and spoke to his sister. The college freshman had corrective heart surgery on the defect in June but will have to be monitored for the rest of his life.

I'm glad my children will have an uncle now.

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